Issue 028
RARE and Under-Funded
The topic of our summer issue was to be RARE and Under-served, which should have been a deep dive into the unique challenges of often overlooked and grossly underserved populations within the rare disease community. Those for whom living with rare presents even greater challenges due to geographical, socio-economic, cultural and societal pressures or biases. Of course, the irony of this is not lost on us. Despite seeing the topic of under-served communities as the head liner theme for countless global conferences and speaker sessions and adorning lavish conference set ups over the last 12 months, we failed to attract a single sponsor on this topic. Underserved and underfunded!
February 2019 Rare Disease Day 19
October 2019 Mental Health Special
February 2020 Rare Disease Day 20
May 2020 ANCA-associated Vasculitis
