Turning the tide for rare disease

Turning the tide for rare disease

Project Sebastian: a safe space for the rare disease community to talk, listen and connect

By CONTRIBUTOR

20 April 2022

Turning the tide for rare disease

The Akari Foundation – a light of hope for people with DMD in the Hispanic community

By CONTRIBUTOR

11 April 2022

Turning the tide for rare disease

Riding the wave of medical research to find a cure for Ellie

By CONTRIBUTOR

6 April 2022

Turning the tide for rare disease

Time for action

By CONTRIBUTOR

28 March 2022

Turning the tide for rare disease

The Global Genes Rare Disease Equity, Diversity and Inclusion Report: the glimmers of hope

By CONTRIBUTOR

23 March 2022

Turning the tide for rare disease

Libmeldy gene therapy offers a lifeline to children with leukodystrophy and gives hope to the rare disease community

By CONTRIBUTOR

23 March 2022

Turning the tide for rare disease

Turning the tide for adult polyglucosan body disease (APBD)

By CONTRIBUTOR

16 March 2022

Turning the tide for rare disease

The Global Genes Rare Disease Diversity, Equity and Inclusion Report: the challenges

By CONTRIBUTOR

16 March 2022

Turning the tide for rare disease

The healing power of storytelling

By CONTRIBUTOR

14 March 2022

Turning the tide for rare disease

Gillian Jackson: bringing positive energy and information to the online BBS community

By CONTRIBUTOR

11 March 2022

Turning the tide for rare disease

How 10,000 people living with disability could end the foster care crisis

By CONTRIBUTOR

7 March 2022

Turning the tide for rare disease

Brace! Brace! Brace… for burnout!

By CONTRIBUTOR

2 March 2022

Turning the tide for rare disease

Turning the tide for rare disease

By CONTRIBUTOR

28 February 2022

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