Patient voice

Patient voice

Hannah, Me and NCSE

By CONTRIBUTOR

10 November 2021

Patient voice

Cavernous malformation and the Breaking Barriers Initiative

By CONTRIBUTOR

5 November 2021

Patient voice

Please don’t call my son a patient

By CONTRIBUTOR

3 November 2021

Patient voice

Reframing the conversation around grief

By CONTRIBUTOR

6 October 2021

Patient voice

RARE Revolution’s bereavement survey

By CONTRIBUTOR

6 October 2021

Patient voice

Mum of four children living with disabling rare neuromuscular disease GNEM raises awareness for foundation aiming to find a cure

By CONTRIBUTOR

20 September 2021

Patient voice

Ataxia and us – Louise and Karls’ Story

By CONTRIBUTOR

20 September 2021

Patient voice

World Hepatitis Day – Krista’s journey with drug-induced autoimmune hepatitis

By CONTRIBUTOR

26 July 2021

Patient voice

Martha Harlam is on a mission and has high hopes for the future of ataxia

By CONTRIBUTOR

31 March 2021

Patient voice

Engagement through social support

By CONTRIBUTOR

29 January 2021

Patient voice

Achalasia Action is shining a spotlight on a rare disease of the oesophagus: achalasia

By CONTRIBUTOR

15 July 2020

Patient voice

National CMV Foundation – Amanda’s story

By CONTRIBUTOR

24 June 2020

Patient voice

EB World Congress—building on momentum and strength in numbers for epidermolysis bullosa

By CONTRIBUTOR

27 April 2020

Patient voice

RAPADILINO syndrome

By CONTRIBUTOR

18 November 2019

« Previous 1 2 3