A day in the life

A day in the life

A Day in the Life: living with sickle cell anaemia-Naomi’s story

By CONTRIBUTOR

23 October 2024

A day in the life

A day in the life of a PSPA helpline manager

By CONTRIBUTOR

14 October 2024

A day in the life

Drunk or disabled? – challenges with ataxia

By CONTRIBUTOR

16 September 2024

A day in the life

#JosiahStrong: Living with familial cold autoinflammatory syndrome—one year on

By CONTRIBUTOR

14 August 2024

A day in the life

If you’re not dancing, something is wrong…

By CONTRIBUTOR

1 May 2024

A day in the life

A day in the life: living with dyskeratosis congenita (DC)—Paula’s story

By CONTRIBUTOR

19 April 2024

A day in the life

A day in the life: living with Bardet-Biedl syndrome—Tessa’s story

By CONTRIBUTOR

16 February 2024

A day in the life

Don’t let your condition define you! David’s journey with stiff person syndrome

By CONTRIBUTOR

14 February 2024

A day in the life

A day in the life: a medically complex condition that is as unpredictable as the weather

By CONTRIBUTOR

29 November 2023

A day in the life

A day in the life: navigating our way through the labyrinth of a newly discovered disease

By CONTRIBUTOR

9 October 2023

A day in the life

A day in the life: a glimpse into my life living with scleroderma

By CONTRIBUTOR

15 September 2023

A day in the life

A day in the life: graduation day for Raymond Huml’s son, Jon

By CONTRIBUTOR

25 July 2023

A day in the life

A day in the life: Josiah’s diagnosis with familial cold autoinflammatory syndrome

By CONTRIBUTOR

28 June 2023

A day in the life

A day in the life: Cathy Moughton, PSPA helpline care navigator

By CONTRIBUTOR

24 May 2023

A day in the life

A day in the life with hypokalemic periodic paralysis: Ralph Berthiaume

By CONTRIBUTOR

1 May 2023

A day in the life

A day in the life with Behcet’s disease: Pamela Price

By CONTRIBUTOR

29 March 2023

A day in the life

My year at RARE Youth Revolution

By CONTRIBUTOR

26 January 2022

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