Close
×
Subscribe Now
By entering these details you are signing up to receive our newsletter.
First Name
Last Name
Your Email
Type of visitor?
Individuals with a rare condition
Caregiver/family member
Industry/biotech/pharma
Healthcare professionals
Charity/advocate
General interest
Newsletters
RAREBite Newsletter Subscribers (Twice Weekly)
Magazine and RARE Round-Up Weekly Newsletter
Latest Edition
Subscribe Now
Home
Meet the team
Magazine
RARE INSIGHTS
A day in the life
Charity & advocacy
Industry insights
Letters
Medical
News
Patient voice
RARE caregiving
RARE ramblings
RARE REV-inar
Reviews
Science & tech
Sunday sessions
Turning the tide for rare disease
THE PEOPLE OF RARE
Digital Spotlight
RARE Reports
Resources
Charity Partners
WORK WITH US
Rare Revolutionaries
Community Gallery
Rare Youth
SHOP
Latest Edition
Subscribe Now
To use more accessibility options, please use a different browser such as Chrome or Firefox.
Industry Insights
Industry Insights
Real-world data in EAPs: makes sense for rare diseases
By CONTRIBUTOR
13 November 2024
Industry Insights
Putting patients first?
By CONTRIBUTOR
2 October 2024
Industry Insights
NICE’s key developments in 2024 in summary
By CONTRIBUTOR
11 September 2024
Industry Insights
How ‘do’ we versus how ‘should’ we think about disease awareness activities?
By CONTRIBUTOR
30 August 2024
Industry Insights
Cell and gene therapies: Where are we now?
By CONTRIBUTOR
31 July 2024
Industry Insights
Early access to medicines: A picture is worth a thousand words
By CONTRIBUTOR
17 July 2024
Industry Insights
What can rare disease services learn from oncology services? A personal reflection
By CONTRIBUTOR
1 July 2024
Industry Insights
What are the next steps for rare disease innovation in the United Kingdom?
By CONTRIBUTOR
15 May 2024
Industry Insights
As we enter a new financial year, how does the UK Budget affect the rare disease community?
By CONTRIBUTOR
10 April 2024
Industry Insights
Living well today: How do we make it happen for the rare diseases community?
By CONTRIBUTOR
13 March 2024
Industry Insights
Rare Disease Day 2024: Sheela Upadhyaya previews some of the events taking place across the world
By CONTRIBUTOR
14 February 2024
Industry Insights
The UK Rare Diseases Framework: Sheela Upadhyaya reflects on recent progress across the UK
By CONTRIBUTOR
12 February 2024
Industry Insights
UK report calls for more government input to make cell and gene therapies a true health system priority
By CONTRIBUTOR
9 January 2024
Industry Insights
Together4RD: making ERN-industry collaboration a key pillar of the future in the rare disease research ecosystem
By CONTRIBUTOR
11 October 2023
Industry Insights
Living well with a rare disease: are we really supporting our community to achieve this?
By CONTRIBUTOR
25 September 2023
Industry Insights
The ABPI Code Partnership events: a step towards better partnerships?
By CONTRIBUTOR
12 July 2023
Industry Insights
COVID: Three years on—what has changed?
By CONTRIBUTOR
3 May 2023
1
2
Next »
Skip to content
Open toolbar
Accessibility Tools
Accessibility Tools
Increase Text
Increase Text
Decrease Text
Decrease Text
Grayscale
Grayscale
High Contrast
High Contrast
Negative Contrast
Negative Contrast
Light Background
Light Background
Links Underline
Links Underline
Readable Font
Readable Font
Reset
Reset